I was so, so hoping that after a couple weeks on this "wonder drug" I'd be singing its praises.
And perhaps that's still to come.
For now - the side effects are worse, and changing.
The extreme exhaustion is still here, without signs of shifting. (And as I've mentioned before, fatigue is already a huge symptom, and battle, with MS. This just compounds it so much further.)
I could sleep all day and be perfectly content. It feels like my body is physically incapable of moving. Every single second.
Try explaining that to a 3 and 7 year old who rely solely on you every day. Nope.
I am also having cardiac side effects. My chest is tight and sore all the time. With a few "oh my god, I'm having a heart attack" zingers thrown in there each day. It's horrible.
This can be normal. But it also might not be. Gilenya does affect cardiac rhythm, but it usually only lasts up to 6-8 hours on the first day. Hence the long first dose monitoring.
So at the moment, I don't know what's going on. Whether this means more testing, more waiting. All I know is those pesky daily shots (that I used to complain about) aren't looking too bad right about now.
On a higher note, though - swim camp for Jack has been a lifesaver this week. And school is likely to start soon!
Now if I didn't have to cook any more blasted meals or do dirty laundry, I'd be set :)