Friday, 26 June 2015

I'm melting...

Or in medical terms, Uhthoff's Phenomena (heat intolerance).

Many people with MS experience a drastic sensitivity to increased body temperature.

Demyelinated tissues in the central nervous system can be very sensitive to even small increases in core body temperature, which results in nerve conduction delays or even conduction block.

This sensitivity can be exasperated by exercise, hot baths, emotion, fatigue, fever, or for me - Summer.  Ugh.

Any MS symptom can appear because of this, with the most common being blurring of vision after activity and overall physical weakness.

Avoidance is the best defense (yeah - tell that to my kids).

For now, I'll use my cooling neck tie (so ugly, but really helps), take lots of cold showers, and make room in the freezer for my entire self...

Only two months to go...

Thursday, 25 June 2015

On Motherhood, at year-end

Sometimes I yell.  Sometimes my shoulders are tight with stress. 

Sometimes I have to take a deep breath and count to three.

I am mostly exhausted. 

And sometimes cranky.

And I never get enough sleep.

But you know what?  It's worth it.  Every moment, however tedious, tiring or repetitive they sometimes can be.

Because these tiny creatures are truly awesome.

And there are days, like today, where you stop just that little bit longer to look at your child's face.  To try and understand them just that little bit more. 

To see them as real people.  Important people.  People growing up in what seems like an instant.

Being proud of my boys is an understatement, for sure.  They have both accomplished so much this school year, have pushed past obstacles and uncertainties, and have come out on top.

I couldn't be a prouder, more sentimental Mom as I am right at this second.

(maybe that's the lack of sleep from a 4am kid nosebleed or the 6 Timbits I just scarfed).

Onwards and upwards for these two guys!


Preschool Graduation


Last day of Grade 2



Monday, 1 June 2015

MS fast fact - dysaesthesia

Or for me, the creepy crawlies.

Dysaesthesia, which means an abnormal sensation, can occur in any area of the body, depending on where central nervous system damage has occurred.  And comes in many forms - pins and needles, tingling, numbness, burning, wetness, crawling, itching, electric shock.  Not to be confused with loss of sensation, or reduced bodily sensation.  These are all common in MS.

Other than tingling and numbness, which are my biggies, the skin-crawling sensation is a common one for me.  It's not permanent, but it always affects me in the same area.

It starts on the tip of my nose and spreads across the left side of my face.  It feels like thousands of bugs are crawling across my skin.

Shudder.

Then it just stops.

And reappears whenever it pleases.

It's a good time to practice my nursery rhymes, I guess...



Thursday, 28 May 2015

More favourites

A few more pictures from the MS Walk.


 



Photos from the MS Society, Lelainia Lloyd, and Penelope Slack.

Wednesday, 27 May 2015

World MS Day

On World MS Day, we take the time to think about Multiple Sclerosis. 

What we know, what we don't know. 

What could be discovered in our lifetimes.

Who has it?  And why?

But we also take the time to thank the people who make living with MS better.  I want to thank my amazing group of family and friends, who support me not only on this day, but every day.  I want to thank the MS Society of Canada (British Columbia), who have provided me with resources, support, and education.  I want to thank my healthcare team, who have answered calls after hours, pushed for urgent appointments, and always make me a priority.

Thank you all.

 
 
Together, we truly are stronger than MS.

So today, on World MS Day, if you know someone with MS, give them a call, send them an email, grab then and give them a giant hug. Ask them how they are doing and tell them you support them.

If you'd like more information about Multiple Sclerosis, check out World MS Day or the MS Society of Canada.



Sunday, 24 May 2015

2015 MS Walk

Wow.

I really don't know what else to say.

Every year I am amazed by the support I receive.  In all forms.  People join the team, people donate, people support me in whatever way they can.

And it all means so much. 

And I have a tendency to get emotional.  But it's amplified so much on days like today.

Our team, Making Lemonade, raised almost $5000 this year, bringing our 3 year total to $19,000!  That all goes directly to the MS Society for the research, services, and support they provide.

That number astounds me.  Makes me so proud.  And none of this could have been done without you.

Thank you so much!

 
 


Friday, 22 May 2015

Radio show!

It's been a very MS-oriented week.  And a very busy one, at that.

I've been preparing for the MS Walk this Sunday - dusting off my tacky yellow (Team Making Lemonade will definitely be in the house!), writing my speech for the pre-walk events.

(Big thanks to my 4-year-old for listening to me practice.  I can tell he just loves it.)

I've been muddling my way through some serious MS "brain fog," which is never fun.  It's this odd haze-like existence - as if your brain can't piece two thoughts together.

Today, Tania Vrionis, President of the BC and Yukon Division of the MS Society, and I sat down with Simi Sara on her CKNW radio show to discuss living with MS.

Here's the SoundCloud link if you missed it:

https://soundcloud.com/cknw/living-with-multiple-sclerosis

And if you'd like to donate to this very worthy cause, click here!  Only two days left.

I think I can speak for everyone involved by saying we are SO EXCITED for the MS Walk events this weekend.  And thank you to everyone who has helped, donated, or spread the word.