Friday, 1 February 2013


If MS had an embassador - a real-life spokesperson - this guy would be it.

His name is Jason DaSilva.

He has primary progressive MS (which is different than my variety - I have the more common relapsing remitting MS).  His condition is much worse than mine. 

He spent part of his life in Vancouver and now is a film maker in New York.  His newest work was just featured at the Sundance Film Festival. 

It documents his life, his journey, his MS.  And this man has become my new hero.

Here is the short trailer and website:

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