Tuesday, 2 April 2013
Brain on fire
How's this for an MS awareness ad?
I am in bed today. Yesterday's inklings of a repeat relapse have come true and my hearing continues to get worse. My brain is foggy and I am feeling weak.
Brain on fire.
Despite my "not wanting to know more" dramatization from my previous post, I did call the nurse today to request information about switching medications. I just can't do another post-injection night of no sleep; being so cold, shaky and achy that I end up in a hot bath at 3am.
I have no idea how that process works - cold turkey? Immediate switch? A medication "holiday?"
First I need to pick the next drug to try.
I hate that I have spent 6 months injecting myself with this stuff, only to find it is not working. Only to discover that it has been a waste of energy, money, and time. I still get horrible reactions from it and I continue to relapse.
I guess this means it's time to move on...