Also known as MS F*$!ing sucks.
I called the MS clinic today to talk with the nurse about my current buzzing, weakness, and imbalance. The crawling sensation on my face has started again too.
My instructions: to watch myself for a couple days, then we'll chat again. Using steroids isn't always effective in curbing a relapse - especially if the symptoms have been around for a while, or are pre-existing. My leg has felt off for a few weeks now, but it only really started interrupting life yesterday. Maybe it will pass, maybe it won't.
The biggest decision made today? It's time to re-evaluate my treatment plan. Relapse after relapse, symptoms, symptoms, and new symptoms. I'll meet with my Neurologist in a few weeks to decide what to do now. New, stronger, medication? Probably...
Tick. Tock. Waiting for this time-bomb body of mine is the hardest exercise in patience. And sanity.
I know there's never really "the right" thing to say when you're feeling overwhelmed (and I know that's not even the right word). You're very often in my thoughts, and always wow me with your strength. Sending big internet hugs...wish there was more I could do.ReplyDelete
Thanks Em :)Delete