Monday, 28 April 2014

Elusive sleep

MRI day has arrived. 

I have to be up in about 5 hours.  And of course, cannot sleep.  I've tried all of my tricks - prescription and otherwise.

You know that feeling where your brain just won't shut off?  That gets amplified and everything becomes an issue. 

My pillow feels funny - Did someone move my perfect pillow?  It feels "wrong."  I'm hungry.  And it's way too hot in here.

This is probably the process that has become the most unfamiliar to me.  I still get so anxious.  Brain and spinal cord MRIs so often I've lost count.  Maybe 6 in the past year and a half?  Getting fried (figuratively, of course) for an hour so early in the morning is just so wrong.

Digression aside, fingers crossed for no changes in my brain, and most importantly - some sleep!

(or maybe a nap tomorrow.... anyone want to take my kid?)


Sunday, 13 April 2014

Walk day!

Today was the most perfect day for the Vancouver MS Walk.

And over $125,000 was raised for the MS Society.  That is amazing!

Team Making Lemonade was first out of the gate for our 3km walk around beautiful Stanley Park:

A giant thank you to everyone who joined us in the sun today.  It was wonderful to see so many happy, supportive faces.  Your presence (and tacky yellow) means so much to me.

And to everyone who donated to Team Making Lemonade - we couldn't have done this without you.  Together, we raised $5000 for the MS Society.  Thank you!

Finally, thank you to the MS Society for asking me to come on board as an MS Ambassador for the BC and Yukon Division.  What a dream for me.

I truly am humbled by everything that happened today.  Thank you everyone.

Sunday, 6 April 2014

One week to go!

Who knew I had such skills as a broken record...

The MS Walk is in one week, and I haven't stopped my fundraising efforts yet.

Let me tell you why this is so important to me. 

Helping the MS Society raise money gives me hope for my future.  It helps me feel more at ease with what is happening to my body every day (even when I can't feel my leg or arm, or my brain gets muddled, or I can't see properly, or I lose my balance and fall).  It helps me worry less about medication costs (about $50,000 a year).  And it helps me tame my how-much-worse-is-this-going-to-get thoughts.

It makes me hopeful that this disease will one day have a cure.

And I do feel hopeful.  Very much so.

Events like this walk help create that feeling.  Being surrounded by people who love and support you, even if you don't see them every day, means more than anything in this world.

One week until Making Lemonade breaks out all that yellow stuff...

If you'd like to make a donation, click here.

Thank you for your support!