Thursday, 21 August 2014
A year in review
Today is my "MS-iversary," as I've come to call it. Two years exactly.
It's amazing how fast things can change.
How your life alters and normal becomes redefined.
The day-by-day lifestyle that comes with a neurodegenerative disease is hard. I try, so much, not to let it consume me.
It wins sometimes.
There have been relapses, new permanence to symptoms, and more appointments than I ever imagined.
But, there has also been a great outpouring of support. Support from people I hardly know. From people I've known forever. Thank you.
This past week has involved a lot of waiting. In my world - waiting equals stress.
I repeated my abnormal heart tests, had my blood work done - it's been almost a week. I haven't heard anything. The waiting is killing me. And everyone is suddenly on vacation. At this point, I don't have a clue what's going on in terms of starting Gilenya.
Adding anxious to anxious is never good.
But, all that being said, year two has been easier.
My type-A self has learned to live with the what-ifs a little better. The appointments don't scare me (as much). I conquered the injections.
So, today? Do I do something special?
As life has it - it is also A&W's Cruisin' to End MS. $1 from every Teen Burger sold goes to the MS Society of Canada.
I can't think of a better way to mark this day. A donation and some awareness.
Huge thanks to A&W Canada, who have raised over $5 million to help people with MS since starting this event.